21*21

21*21 Eigenschaften des Abus Kurzzylinders

Jede Doppelt-Uhrzeit hat ihre ganz besondere Bedeutung und sendet uns eine Botschaft unseres Schutzengels. Welche Bedeutung hat Uhr? 21 Lektionen für das Jahrhundert | Harari, Yuval Noah, Wirthensohn, Andreas | ISBN: | Kostenloser Versand für alle Bücher mit Versand. 21 mit Schraubanschluss und steckbarem Miniaturrelais mit Leistungskontakt, zur Montage auf Tragschiene NS 35/7,5, 2 Wechsler, Eingangsspannung 24 V. Bei der Trisomie 21 handelt es sich um die häufigste autosomale Chromosomenaberration des Menschen. Die Inzidenz liegt bei etwa Lebendgeborenen. Zahlenmagie – Die Zahl 21 in der Numerologie – Chancen, Erfolg, Ziele erreichen. Details: Kategorie: Zahlen und ihre spirituelle Bedeutung: Zugriffe: Die.

21*21

Kurzzylinder ABUS 21/21 oder 21/26 mm ✓ kundenspezifisch angefertigt ✓ Anti-​Picking-Stifte ✓ Stahl - silber mattvernickelt ✓ → Jetzt bei Wagner bestellen. Lesen Sie hier alles über die Epidemiologie, Klinik und Diagnostik der Trisomie 21 sowie die Möglichkeiten der Therapie dieses Krankheitsbildes. Die AERO 21 / AERO 21 INOX sind die kleinsten Modelle der neuen AERO-​Baureihe. Sie verfügen über ein kompaktes Design sowie über einfach zu. Abortion is Lotterie Online a legal means for a eugenicist mindset. Of course not. We all know that talk of cognitive research is a Beste Spielothek in MГ¶venwerder finden field still. I sincerely hope I just haven't been looking hard enough. Down syndrome and other serious health problems… " Several times McGowan refers to 21*21 as " SeriГ¶se Geld Gewinnspiele " as if both SCAs as well as Trisomy 21 are diseases. What does The Mighty aspire to? You must have full documentation of the lawful origin of each raptor, and each must be identifiable with a seamless band issued by the Service, including any raptor with an implanted microchip for identification.

21*21 - Zahlenmagie – Die Zahl 21 in der Numerologie – Chancen, Erfolg, Ziele erreichen

Dabei sind die Erbinformationen des Chromosoms 21 ebenfalls dreifach vorhanden. Dies liegt darin begründet, dass durch den Wegfall der kurzen Arme der akrozentrischen Chromosomen kein proteinkodierendes genetisches Material verloren geht. Folglich kann die Sonographie zu falsch positiven oder falsch negativen Ergebnissen führen. Sie haben ein Projekt ins Rollen gebracht und um dessen Früchte zu ernten, dürfen Sie nicht nachlassen. Das Down-Syndrom kann im Rahmen der Pränataldiagnostik erkannt werden. Die AERO 21 / AERO 21 INOX sind die kleinsten Modelle der neuen AERO-​Baureihe. Sie verfügen über ein kompaktes Design sowie über einfach zu. Das Chromosom 21 liegt nicht zweimal, sondern dreimal (Trisomie) im Erbgut vor​. 2 ICDCodes. Lesen Sie hier alles über die Epidemiologie, Klinik und Diagnostik der Trisomie 21 sowie die Möglichkeiten der Therapie dieses Krankheitsbildes. Bereits ab ,77 € ✓ Große Shopvielfalt ✓ Testberichte & Meinungen ✓ | Jetzt Nilfisk Aero PC günstig kaufen bei beautifulwild.nl Kurzzylinder ABUS 21/21 oder 21/26 mm ✓ kundenspezifisch angefertigt ✓ Anti-​Picking-Stifte ✓ Stahl - silber mattvernickelt ✓ → Jetzt bei Wagner bestellen. Die Infektanfälligkeit bei Betroffenen ist erhöht und auch das Auftreten von Leukämien wird häufiger beschrieben. Hinterlassen Sie einen Kommentar 5 4 3 2 § 309 Nr. 5 Bgb 0. System 50 Saugrohre. Sitzmann F. Bitte füllen Sie das Formular aus, und wir werden uns so schnell wie möglich bei Ihnen melden.

21*21 Video

21 Savage - Bank Account (Official Audio) Die Lebenserwartung der Betroffenen liegt derzeit bei durchschnittlich 50 Jahren und ist aufgrund verbesserter therapeutischer Möglichkeiten ansteigend. Sie tragen das Leid der Welt nicht auf Ihren Schultern! DocCheck folgen:. Eine veränderte Expression von Dutzende Gene sorgt bereits für den typischen Phänotyp der Trisomie Dafür bedarf es eines liebevollen Account [email protected] und ärztlicher sowie psychosozialer Betreuung. Auch wenn mir das nicht wirklich gefällt, in einem Fachartikel, muss meiner Meinung nach schon stehen, dass die Möglichkeit! Das Chromosom 21 ist überzählig, also 1000 Euro TГ¤glich statt zweimal vorhanden. Hinterlassen Sie einen Kommentar. Anne Düchting. Artikel schreiben. Um diesen Artikel zu kommentieren, melde Dich bitte an. Diese Veränderungen können sowohl Teile eines Chro Hinterlassen Sie einen Kommentar 5 4 3 2 1 0. Beste Spielothek in Kleinviecht finden 21*21 auf verschiedene Wege gewonnen werden:. Zur Info noch: Legale Schwangerschaftsabbrüche sind in Deutschland nicht bis zur Als Resultat ist das Chromosom 21 in allen Zellen dreifach vorhanden. Durch Weitergabe des Translokationschromosoms zusammen mit einem unauffälligen Chromosom 21 entsteht nach der Befruchtung eine unbalancierte Translokationwodurch das klinische Bild des Down-Syndroms hervorgerufen wird. Die Infektanfälligkeit bei Betroffenen ist erhöht und auch das Auftreten von Leukämien wird häufiger beschrieben. Dann versucht Ihr Schutzengel Ihnen etwas mitzuteilen. Die Lebenserwartung Deutschen BundeslГ¤nder Betroffenen liegt derzeit bei durchschnittlich Sportwettenanbieter 2020 Jahren und ist aufgrund verbesserter therapeutischer Möglichkeiten Seitensprung Berichte. Um Fcb Vs Bvb mehr zu erfahren, entdecken Sie auch die anderen Doppelt- und Spiegel-Uhrzeiten und ihre Bedeutung oder entdecken Sie ihre Numerologie Vorhersagen Spiele Grow - Video Slots Online

So, as you might have guessed, The Mighty is not actually referring to my diagnosis seeing as I have none , they're referring to my kid's diagnosis of Trisomy 21, Down syndrome.

Ah, of course this is about my kid, a minor, not me, a consenting adult. This is about my family - my husband and I - and how we must struggle because the person who started The Mighty did: "Lying in bed that night we were shaken and lost.

This was not the life or family we had planned. I remember feeling small and hollow, a powerless husband and father. Whether it was a futile attempt to comfort my wife or a way for me to make sense of it all, I told her that we were going to do something good with this.

How, she asked. I had no idea. We were in tears. However, should that mean that a powerhouse should be beyond criticism, because the intentions are benign and in accordance with one person's understanding of "doing something good" with a situation they didn't want to find themselves in?

I don't think so. Of course not. What does The Mighty aspire to? They write that they " At its best, it could actually help people.

Seems like something that could be good, right? But what does "helping people" entail in the world of disability?

Who do they want to "help" and how? Why are they telling me that they don't think I should "face a diagnosis alone?

When do we cross the line to inspiration porn aimed at the non-disabled, non-marginalized audience? Ultimately we want to improve the lives of people facing disease, disorder and disability.

As far as changing the path of someone's day, that happens to me most every time I come across an article, especially about Down syndrome, being featured on The Mighty.

I come away from the encounter a little more defeated and angered, and feeling like I continue to bang my head against an ableist wall of inspiration.

But that's just me. Come on, the site's harmless and at least it's not disparaging and filled with hate unlike you , you might be thinking, but hopefully aren't.

Is it though? Is it harmless to keep the grief narrative alive and well and more powerful than ever?

Is it harmless to center the parents, the family, as opposed to the disabled person themselves? Is it really harmless to tell a new parent trying to suss out whether they're truly grieving a diagnosis or simply concerned about how their kid will fare in the world that is not designed for someone not considered typically developing, that it's okay to cry and grieve the "child they lost" and to let no one tell them they shouldn't?

Not harmless in my book. Seems rather damaging for a kid who is everything but "lost. The majority of the articles featured seem to be written by parents of differently disabled children.

To The Mighty's credit, however, I feel I must mention that there are articles written by disabled adults. They do exist on the site, they do.

They are not the majority, and I'm not often sure what their purpose is, but they're there. So who is the site for then?

By the looks of it, it is targeted to the non-disabled parents of newly born disabled or newly diagnosed children.

This is a site about disabled people. About someone other than themselves coming to terms with their diagnosis, or sometimes seems like, their existence.

The Mighty could be so good, so empowering. There are inklings of this. I hope they refocus and redefine. I hope they become less satisfied with themselves and their general crowd appeal of feel-good and glossy, and truly help create something new.

With , not about. I don't ask for much, but I do ask this: Do not pull the rug from under my kid's or her peeps' feet.

Just don't. There is no grace, love, or acceptance in something that ultimately hurts her. As long as we keep centering the parents, the families, regardless of how good our intentions are, we are not creating strong advocates with their own strong voices, and their allies.

The disabled voices remain erased, no longer buried in institutions but nonetheless largely drowned out by those who mean well. We can do better. I know we can.

Saturday, May 24, Birds and why they're sometimes flipped. This is a blissful state. Good, nice and respectful people are easy to like and get along with, and evil people are easy to hate and yell at.

These villains are easy to identify and dismiss, what with the tentacles, overt candy-stealing habits, and the Mr. Burns fingertip-tent.

And then there's the cackle. The cackle is a dead giveaway. I love the above state. That state is easy.

It's nice. And it really does make sense, based on all of the things us humans do for and say about our fellow humans, to believe that this is the state that we're comfortably in, as a society.

With all of the religions and philosophies so popular in today's world by which I mean based on the crowdedness of my Facebook feed with cat-photos, inspirational memes, and bible verses , it makes sense to think that most people wouldn't want to intentionally tread on the fragile lives of others.

Blissful lull, I tell ya. Then something happens. Someone, let's say a school district, who is supposed to be an ally to their students, those with disabilities and those without, not only stumbles and falls, but thinks they're not falling nor stumbling.

Wait, they're perfectly upright! They're firmly perched on where they need to be. For them it's perfectly okay to be looking down on this poor kid who has had this horrible , oh so terrible tragedy happen to her in the form of being born with 47 chromosomes in her cells.

Oh the horror of a genetic variant. Or, actually, no. Aren't they supposed to be happy all the time? Poor defective kid, her.

Poor, poor child. Let's make sure she has at least some modicum of life. Let's help her, let's give her the tools to be able to live in her parents' modified basement, under constant monitoring, while she stays a child, for forever.

Screw her future hopes and dreams and aspirations, she needs to be working on her IEP goals to ever be able to live.

Seems they're thinking. Causing significant delays," someone says and looks pityingly at this kid who is doing her all to ingeniously escape from her mom's clutches because it's a boring meeting and, well, there's bound to be a tinytot-sized way out of this place.

There always is, for a persistent, inventive child. A specter of a Down syndrome past has entered the meeting room before the person with Down syndrome and the school district's not really interested in shifting its gaze.

They're too busy staring at this abomination of a debilitating condition. Down syndrome and inventiveness are not comorbid, Down syndrome and segregated for one's own good are.

The self-contained classroom "might not be the least restrictive environment, but it might be the environment where we can meet her needs best," that someone continues with in an impending violation of Individuals with Disabilities Education Act.

Through him, the school district lays it out. No one has evaluated the kid in any way yet. This is the first time anyone from the district lays eyes on her.

What they have is paperwork with her "actual medical diagnosis" on it, which according to them seems to mean that an inclusive preschool program is likely beyond her.

Well, maybe the school nurse can diagnose a hole in her heart that specialists with ultrasounds and echocardiograms couldn't.

Could happen, right? After all, Down syndrome is what killed Ethan Saylor too. By someone who doesn't have a single tentacle and doesn't even cackle.

A person who means well says "they will be able to spend some time in the inclusive classroom too. By virtue of her chromosomes she has become someone who needs, an eternal recipient, a burden on the system.

Someone to be rescued, aided, and helped. Never an equal, always a case. Thanks a bunch. Labels: Allies who are not allies after all , give me a fucking break please , This guy was a total fucking dick.

There is a government registry of people with Down syndrome that purports to provide "an important resource to individuals with Down syndrome and their families," and to link "those seeking volunteers for their research studies with those who most stand to benefit from the research.

Incredibly important stuff, that. But: Causes, pathophysiology, and disease progression. Topics include aging and Down syndrome, the effect of cellular and molecular processes on symptoms, and cognitive functioning in model mice.

Diagnosis, screening, and functional measures. Goals in this area include improved characterization of Down syndrome phenotypes, investigation of measures of cognitive function throughout the lifespan, and better linkage between human and mouse studies.

This topic area includes testing orphan drugs, measuring the impact of early intervention on cognitive development, and using Alzheimer's disease research to inform potential therapeutics.

Comorbid medical and psychiatric conditions. Research explores treatment and management of such conditions as leukemia, congenital heart disease, and dementia.

Living with Down syndrome. Studies cover a broad range of issues, such as tracking real-world outcomes for families living with Down syndrome, health disparities in access to care, and interventions for transitional stages.

Research infrastructure. Efforts include promoting the inclusion of people with Down syndrome in a range of NIH-sponsored clinical trials, building tissue and brain banks, and improving availability of animal models.

Even without picking apart the language as I'm wont to do and as is sorely needed in this textbook medical-model document, what is it that's really there?

How many of these points center on something relating to cognitive function, or cognitive development? Which is Down syndrome, while other stuff is co-morbid.

Much effort and much emphasis is on research to do with affecting cognition or its development. We all know that talk of cognitive research is a mine field still.

On one end of the continuum of thoughts on this debate, there are people who cannot understand why someone wouldn't want to have as 'typically developing', 'independent' and sometimes even as 'socially acceptable' a child as possible if they had the chance, and on the other end there are those who believe that their children are exactly who they were meant to be and wouldn't imagine doing anything that might alter what they understand as their kids' 'essence' in any way.

But it's not only about what the parents say and most definitely shouldn't be, perhaps at all another post, on guardianship, coming soon. There are people with Down syndrome who say that they are proud of who they are just the way that they are and regardless of their perceived intellectual disability wouldn't want to change their cognition, and there are other people with Down syndrome who would like help in making their "brain better " at least in the studies in this link, there's emphasis on listening to the actual participants and making sure they want to participate, and that they understand what they're participating in and why.

If I had a genetic condition someone was creating a registry about, I'd want to have been offered the chance to be heard, not just those around me.

But that's just me, I like to have a say in matters that directly affect me. I can only speak for myself, and only hypothetically, since I don't actually have Down syndrome, or another genetic condition that there is a research registry about.

But I do know that I wouldn't want to change my cognition. I like my cognition fine the way it is and yet basic math overwhelms me, something I don't mind especially or would want to change.

Why would I? My inability to do basic math has worked and still constantly works to steer me to humanities. Something I wouldn't change for the world.

Maybe I would feel differently if the world kept telling me that there was something wrong with my cognition, instead of helping me out when numbers overwhelm me?

But wouldn't that mean that I should be getting angry at the world for telling me such lies instead of trying to make myself more tolerable to others, or instead of wanting to provide brain tissue samples so that researchers could study my difficulties with fractions in hopes of treating them?

Where do we draw the line between medical and social? So that I, as a parent not involved in any kind of research, can view " similarities "?

This should not be a debate or a discussion of whether Down syndrome should or can be "treated" and whether that's something one supports as a course of action, this should be a discussion on what makes us think and believe that intellectual disability so not leukemia, not heart defects, not celiac disease, not hypothyroidism is a pathology that consists of impairments that should be done away with with different kinds of chemical and physical interventions to the greatest possible extent, instead of accommodating for differences in cognition, ability, and memory.

If we call them challenges, the narrative of overcoming is sure to tag along. I'm not willing to compromise the kind of world we live in.

I'm not willing to say "I'll take the trickle of good research efforts focusing on actual medical issues with the river of what is sold as suffering from mental deficits and lack of independence.

Research efforts don't take place in a vacuum. They help shape people's perceptions, especially when they make the news. If we keep telling the world that we welcome "medical solutions" to this "problem of cognitive deficits" what are we really doing to people with Down syndrome?

To acceptance? To inclusion? To equality? To civil rights and liberties? What the research can all too easily imply and promote is that intellectual disability is a "medical problem" in need of a "fix", "treatment" or a "cure" instead of the result of a society that considers intellect, and alongside it a specific kind of independence, as inherently valuable as well as a necessity, with that specific kind of independence as proof thereof, for something like "adequate survival" in life.

This is something that we need to think about, consider, and discuss. We need for people with Down syndrome to take the lead.

What exactly are we putting out there about Down syndrome, and about people with Down syndrome? Maybe I am throwing the baby out with the bathwater and being unfair to my own child.

That's a thought I'm definitely considering constantly as I muddle along on this path of parenthood. I want to look at this, as I do most things, from all angles, and I want to do right by my kid and others with Down syndrome.

There's also the chance that I'm telling the world that " people with Ds count, and that we want more for them ," by not buckling under the pressure to sign someone other than myself, who really should have her own say about this once she's able, up for something that just might end up reinforcing perceptions of her as a lesser being who should be treated, fixed, and improved or at least mitigated as soon as possible.

I'm not inciting a revolt against the registry, I'm simply telling you why I personally find it difficult to jump in head first, especially since I don't have my daughter's guidance on this just yet, into those murky waters that end up splashing all over mainstream news and thus greatly shape thinking and eventually the way that people with Down syndrome will be viewed in society, professionals and researchers included, and why I think the entire foundation of the registry, the process as well as the forces that brought it about need much further consideration.

I am outlining my concerns in response to the, frankly rather ridiculing assumption that I'm either "overwhelmed" by paperwork, or that I find the registry "creepy" or "complicated" in some Big Pharma conspiracy-theory way , since I haven't signed my kid up yet.

I'm not denouncing the registry entirely either, I simply think that instead of our gushing support and guilting rhetoric to round up participants, it would be nice to see pressure placed on those consortium members who are, after all, the representatives of those at the center of this, individuals with Down syndrome.

For them to keep listening to those they represent, and to actively constantly assess whether what's happening is in their representees' best interest, and how it will influence all areas of their everyday existence in society.

That's not something I've witnessed at this point. I sincerely hope I just haven't been looking hard enough.

Checks and balances aren't in place with the registry just yet. Fundamental concerns remain largely unaddressed. Certain efforts seem misplaced and misguided.

I'd like to see more discussion about the basics, about the directions of research, about consent and need. About agency and voice. About people with Down syndrome, not about " families living with Down syndrome.

A public policy that was cited by Nazi doctors, in their defense, during the Nuremberg trials. Are we still hung up on a super race, a member of which never needs assistance with anything?

Just not actually using the words super or race , but independence , intellect , and productivity instead? Where does medical stop and social begin and vice versa?

Labels: advocacy sadly has nothing to do with avocados , Avocodos could take over the world and I'd be all like more snacks for me , Edward Said's Other , geez whiz I didn't swear even once.

Today is World Down Syndrome Day. Today is not about creating or spreading awareness FYI, not really about awareness, like, ever , yo , not even really about acceptance although every single day should be about active acceptance, so there's that.

About the kind of celebration of difference that doesn't try to see past or beyond the disability by ignoring it completely or by only searching for similarities, but the kind that views it as an accepted part, sometimes a defining one if the disabled person so chooses herself, of a person.

The kind of celebration that embraces how a person chooses to define herself. All of one's self. Today is not about how regular we all are - and we are, most of us anyway, I and my daughter included - but about enjoying life, and having access to learning and community.

What these self advocates speak of in this clip: Today is about access to healthcare and not having one's health concerns brushed aside with "We often see this in Down syndrome.

You must have full documentation of the lawful origin of each raptor a copy of a propagation report with band number or a A report , and each must be identifiable with a seamless band or a permanent, nonreusable, numbered Fish and Wildlife Service leg band issued by the Service, including any raptor with an implanted microchip for identification.

We may exempt a raptor from banding because of health concerns, but you must provide proof of the exemption from your falconry permitting authority.

All migratory birds imported into, or exported from, the United States, and any associated documentation, may be inspected by the Service.

You must comply with the import and export regulations in Part 14 of this chapter. Your application package must include a completed application form , or if the import or export is associated with an application for a scientific collecting permit , and a check or money order made payable to the U.

Yes, standard conditions for your permit are set forth in part 13 of this subchapter B. You must also comply with the regulations in part 14 Importation, Exportation, and Transportation of Wildlife.

We may place additional requirements or restrictions on your permit as appropriate. Your migratory bird import or export permit will be valid for not more than 5 years.

It will expire on the date designated on its face unless it is amended or revoked. Please help us improve our site! No thank you.

21*21

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Those in the country of Judea must run to the mountains. Those in the city must leave at once. Those in the country must not go into the city.

Then those in Judea must flee to the hills. Those in Jerusalem must get out, and those out in the country should not return to the city.

Then let the people who are in Judea flee to the mountains, and let those who are in the city get out. And let not those who are in other countries enter in.

Then those in Judea must flee to the mountains, and those inside the city must leave it, and those out in the country must not enter it;.

Then the ones in Yehudah, flee to the mountains, and the ones inside HaIr the City , let them get out, and the ones in the sadot fields , let them not enter into HaIr the City ,.

At that time all who are living in Judea must flee to the mountains. Those who live inside the city gates, go out and flee, and those who live outside the city must not enter it seeking refuge.

And let those who are in the city depart. And do not let those who are in the country enter. Then let those who are in Judea flee to the mountains, and let those who are inside the city depart, and let not those who are out in the country enter it;.

Then those in Judea must flee to the mountains, and those inside the city must get out, and those in the countryside must not enter her.

Let those who are in the middle of her depart. Let those who are in the country not enter therein. Then the people in Judea must go quickly to the hills.

Those who are in the city must leave it. Those who are in the country must not come into the city. Then they that be in Judaea, flee to the mountains; and they that be in the middle of it, go away; and they that be in the countries, enter not into it.

Previous Luke Top. All rights reserved. Used by Permission. Used by permission. All Rights Reserved. Published by Tolle Lege Press.

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All rights reserved worldwide. No part of this work may be reproduced or transmitted in any form or by any means, electronic or mechanical, including photocopying, recording, or by any information storage and retrieval system, without permission in writing from the copyright owner.

I'm not willing to compromise the kind of world we live in. I'm not willing to say "I'll take the trickle of good research efforts focusing on actual medical issues with the river of what is sold as suffering from mental deficits and lack of independence.

Research efforts don't take place in a vacuum. They help shape people's perceptions, especially when they make the news. If we keep telling the world that we welcome "medical solutions" to this "problem of cognitive deficits" what are we really doing to people with Down syndrome?

To acceptance? To inclusion? To equality? To civil rights and liberties? What the research can all too easily imply and promote is that intellectual disability is a "medical problem" in need of a "fix", "treatment" or a "cure" instead of the result of a society that considers intellect, and alongside it a specific kind of independence, as inherently valuable as well as a necessity, with that specific kind of independence as proof thereof, for something like "adequate survival" in life.

This is something that we need to think about, consider, and discuss. We need for people with Down syndrome to take the lead. What exactly are we putting out there about Down syndrome, and about people with Down syndrome?

Maybe I am throwing the baby out with the bathwater and being unfair to my own child. That's a thought I'm definitely considering constantly as I muddle along on this path of parenthood.

I want to look at this, as I do most things, from all angles, and I want to do right by my kid and others with Down syndrome.

There's also the chance that I'm telling the world that " people with Ds count, and that we want more for them ," by not buckling under the pressure to sign someone other than myself, who really should have her own say about this once she's able, up for something that just might end up reinforcing perceptions of her as a lesser being who should be treated, fixed, and improved or at least mitigated as soon as possible.

I'm not inciting a revolt against the registry, I'm simply telling you why I personally find it difficult to jump in head first, especially since I don't have my daughter's guidance on this just yet, into those murky waters that end up splashing all over mainstream news and thus greatly shape thinking and eventually the way that people with Down syndrome will be viewed in society, professionals and researchers included, and why I think the entire foundation of the registry, the process as well as the forces that brought it about need much further consideration.

I am outlining my concerns in response to the, frankly rather ridiculing assumption that I'm either "overwhelmed" by paperwork, or that I find the registry "creepy" or "complicated" in some Big Pharma conspiracy-theory way , since I haven't signed my kid up yet.

I'm not denouncing the registry entirely either, I simply think that instead of our gushing support and guilting rhetoric to round up participants, it would be nice to see pressure placed on those consortium members who are, after all, the representatives of those at the center of this, individuals with Down syndrome.

For them to keep listening to those they represent, and to actively constantly assess whether what's happening is in their representees' best interest, and how it will influence all areas of their everyday existence in society.

That's not something I've witnessed at this point. I sincerely hope I just haven't been looking hard enough. Checks and balances aren't in place with the registry just yet.

Fundamental concerns remain largely unaddressed. Certain efforts seem misplaced and misguided. I'd like to see more discussion about the basics, about the directions of research, about consent and need.

About agency and voice. About people with Down syndrome, not about " families living with Down syndrome. A public policy that was cited by Nazi doctors, in their defense, during the Nuremberg trials.

Are we still hung up on a super race, a member of which never needs assistance with anything? Just not actually using the words super or race , but independence , intellect , and productivity instead?

Where does medical stop and social begin and vice versa? Labels: advocacy sadly has nothing to do with avocados , Avocodos could take over the world and I'd be all like more snacks for me , Edward Said's Other , geez whiz I didn't swear even once.

Today is World Down Syndrome Day. Today is not about creating or spreading awareness FYI, not really about awareness, like, ever , yo , not even really about acceptance although every single day should be about active acceptance, so there's that.

About the kind of celebration of difference that doesn't try to see past or beyond the disability by ignoring it completely or by only searching for similarities, but the kind that views it as an accepted part, sometimes a defining one if the disabled person so chooses herself, of a person.

The kind of celebration that embraces how a person chooses to define herself. All of one's self. Today is not about how regular we all are - and we are, most of us anyway, I and my daughter included - but about enjoying life, and having access to learning and community.

What these self advocates speak of in this clip: Today is about access to healthcare and not having one's health concerns brushed aside with "We often see this in Down syndrome.

Today, or any day really but you know what I mean, is about recognizing, talking about, accepting, celebrating, and accommodating for Down syndrome.

Today is about people with Down syndrome. Not a single eyebrow should be raised, not a single scoff heard. This should not be, and isn't, a radical idea.

I want my daughter to be able to say "I'm proud to have Down syndrome. Mother Nature thinks so too and gives Down syndrome two thumbs up: One final thought, because it's eating me up.

The same one I had last year also so maybe I should scream it today? Can we have a reasonable explanation, and can someone reassure me that regardless of all evidence, associating strange socks with Down syndrome isn't counterproductive to acceptance after all, please?

And why does supporting this absolute incongruence seem to cost money? Thought so. I'll see your socks and raise you pride. For free. How's that for a good start to a celebration?

Labels: beyond awareness like yo , geez whiz I didn't swear even once , just say no to socks , WDSD , who came up with this socks idea anyway , World Down Syndrome Day.

Thursday, March 6, Prenatal testing and "debilitating" disabilities. There isn't much I'm going to say about abortion in this post.

Because aborting fetuses with Down syndrome is not about abortion, not about whether it should be legal, how far into the pregnancy it should be legal, whether it should be allowed especially or denied especially because of the fetus having Trisomy Attacking abortion will simply lead us astray, lead us to ignoring the reality in play and the real, actual people who are already here.

Abortion is simply a legal means for a eugenicist mindset. Targeting the means might feel appropriate to many, especially to those who feel abortion in general is wrong, but that won't allow us to even scratch the surface of what is at issue here - the devaluation of some members of humanity by other members based on random strangers' internalized arbitrary standards, as well as the process that leads to that internalization.

Even the eugenicist mindset is not the root of it all, it's simply the product of these value judgements placed on certain individuals, sometimes based on perceptions of health or longevity, often a kind of assumption of productivity, other times an estimated 'cost' to society, spiritual, mental, or material, at times even esthetics, and many other "reasons" all of which, once put through the wringer, come out on the other side as casuistry and reliance on what are essentially very flawed and very antiquated pieces of "reasoning" and "logic".

Although I'm well aware that they exist, I'd be hard pressed to find an individual in favor of exterminating everyone with Down syndrome.

Because, when I put it like this, we'd be talking of genocide, something akin to Hitler's T4 campaign. Not many people approve of the tactics used by the Nazis in their quest to 'purify' the Aryan race.

There exists a clear denunciation and abhorrence of Nazi ideology in modern societies. We seem to agree that Hitler's logic was faulty, his aims delusional and disgusting, and stemming from a place so dark that many of us don't care to identify it as a place that could exist in a person.

Yet, in reality, when we really look at how we're proceeding here as humans, at the ways that disabilities, and especially Down syndrome, get talked about, when we consider how language shapes our perceptions of the world, how it doesn't necessarily reflect anyone's lived experience but takes its cue from a standard presentation, how it can be used to favor a medical professional over a passionate person, parent, or sibling, it can leave us gasping for air when we follow its pointers to their logical end.

I don't think we give "just words" enough credit in the maintenance of the oppressive systems that plague most of our societies today. In the past week two weeks now since life got the better of my editing and publishing intentions I've encountered two articles about prenatal testing.

Both mention Down syndrome. Both are from respectable mainstream sources. McGowan's piece does not directly deal with testing for Down syndrome, but focuses on a specific sex chromosome aneuploidy, Klinefelter's syndrome.

However, possibly because Down syndrome is the most well known of aneuploidies, she uses it to set up a kind of a severity hierarchy of aneuploidies.

She attaches the term "debilitating" to Down syndrome in a much greater degree than to Klinefelter's syndrome. A photo caption for the story talks of " Down syndrome and other serious health problems… " Several times McGowan refers to phenotype as " symptoms " as if both SCAs as well as Trisomy 21 are diseases.

Regardless of what the headline of the article purports is the question the article addresses - whether expectant parents might be making decisions to terminate a pregnancy in the case of an aneuploidy too rashly - in fact, our beliefs that all aneuploidies are bad news, and of all those aneuploidies some are worse news than others are reinforced by word choice.

It is set up as fact that all aneuploidies debilitate, as in "make someone weak and infirm", but some of them, and I can't but wonder whether what we understand as intellectual disability isn't one of the major defining factors in arriving to this degree of debility - for McGowan specifically in this instance, but really for the cultural constructs she draws from to make these broad statements on disability - make someone even more "hindered, delayed, or weakened" than others.

The article begins by all but picking up a paint brush with red paint on it and repainting the edges of that box with the giant tick-mark in it that says NORMAL in bold.

Who are we employing as this non-debilitated example whose life is smooth sailing and not hindered, delayed or weakened by a condition?

Well, of course a person without an aneuploidy. Or in the specific case of this article, a person with a sex chromosome triploidy that can be fully remedied to practical nonexistence if only detected early enough.

Double duh. Disability is bad, yo. Normal is the new and the old black. However, the only guaranteed difference between a person with and a person without an aneuploidy is the number of their chromosomes.

There are no guarantees on what those chromosomes are doing for their owner. Heart conditions are not unique to Down syndrome. Celiac disease is not unique to Down syndrome.

Neither is leukemia. On the flip side, high intelligence is not guaranteed in a state of no aneuploidy. Neither is a happy marriage, a paying job, chocolate, good books ad libitum, great friends, being able to stick to your budget, or you know, living a happy, long life while contrasting oneself to those with a short life of suffering that is the unequivocal result of an aneuploidy.

The only guaranteed result of an aneuploidy are people who will have, or who other people will perceive to have a more difficult time functioning in a society that was specifically designed in ways that do not meet their needs, ignores those needs in favor of meeting the needs of a statistical illusion, deems those needs less valid in a multitude of theoretical as well as material ways, and justifies not meeting those needs in subtle ways through language, arguments focusing on an unchallenged concept of 'common good', access and its denial, and beliefs and belief systems.

If it takes you longer to process things, or if you are unable to easily comprehend whether someone's being sarcastic or earnest about what they're saying, or if you don't really understand what being sarcastic is all about and prefer to listen to the words and decode their literal meaning does that mean you are debilitated?

Does that make you unhappy? Is debilitating the same as suffer? If someone whose condition debilitates them is unhappy with their life then Down syndrome is not a debilitating condition.

At least statistically. Yet, the word 'debilitating' and its connotations and baggage are there in the article, as are other words that subtly work to first introduce and then reinforce how anyone reading the article will view aneuploidies in particular and disability in general.

The language subtly props up the medical model while downplaying the social model. The language sticks close to the notion of people as pathologies, instead of everyday, regular individuals.

And we read on, while we read in, take on board, integrate, let shape and set in. Without our even truly realizing it, we are steered towards the understanding that disability is something to be fought, eradicated, in need of curing or fixing.

We are lead towards thinking that all disability equals suffering and aborting an 'abnormal' fetus is a morally, not only acceptable, but the caring parenting choice to make.

I did say parenting choice. When disability is concerned even murder is sometimes cloaked in the language of parenting and love.

It's a slippery slope my friends. Eugenics and what we consider especially despicable about Nazi ideology can be found right there, right within the word "debilitating.

Although in the case of the prenatal tests discussed in these 'balanced' articles, the notion of knowledge and information being good things is almost always invoked, and rightly so in my opinion, these are almost always made to signify the medical aspects of a genetic variant "1 in 2 children with Trisomy 21 will present with a heart condition.

And the intent, if there ever was one, to present something multifaceted and complex, is crowded out by the dogma inherently there in the chosen language.

No measure of considering context or a multitude of potential meanings will stop the internalization of the construct brought on and reinforced by the reading.

Reinforcing an existing fallacy will do nothing to affect change. It will do the opposite. The paradigm won't shift if we turn the other cheek or appreciate the intent.

McGowan's piece leaves the reader on a hopeful note, which I greatly applaud, but that contrasts with the language employed in the piece.

21*21 Video

21 Savage - a lot ft. J. Cole

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